International Patient Summary (IPS) project

Aim of the project: To participate in the creation of an International Patient Summary specification, at a global level, and turn this European knowledge and interests into a European Standard, in line with the Guidelines on Minimum/Nonexhaustive Patient Summary Dataset for Electronic Exchange as adopted by the European eHealth Network.

Deliverables will be:

The project team exists of the following experts:

  1. Stephen Kay, project leader
  2. Karima Bourquard, PT-member
  3. Giorgio Cangioli, PT-member
  4. Vincent van pelt, PT-member

Context in which the project is accepted:

This proposal addresses the 2015 Rolling Plan on ICT standardization and in particular Action 4, in which the work of the Joint Action Supporting the eHealth Network (JAseHN) is specified. Currently, the Joint Initiative Council on Global Health Informatics Standardization (JIC) is launching a global standardization activity resulting in a set of implementable standards for the exchange of an International Patient Summary. A draft outline of this work is published for commenting purpose (

This proposal aims to support 1) the European participation in this global standardization activity and 2) the development of a European Standard on Patient Summaries, based on the global standardization work. After its official publication by CEN, the latter will be subject of approval by the eHealth Network (eHN), who are the principal stakeholder and have an ongoing role in establishing Patient summary guidelines (see section 1, 1.3).

The Multi-annual Work Plan (2015-2018) of the eHealth Network identifies both the work on the cross-border exchange of Patient Summary data and the alignment of standardization activities in eHealth as key priority areas. The JAseHN has incorporated both in their work plan, with work package 5 aiming at the alignment of standardization activities. This action aims to support the JAseHN WP5 specifically in the standardization of the Patient Summary.

In addition, the Horizon 2020 PHC34 CSA project eStandards is also providing support to the International Standard for Patient Summaries, as per task 5.2 of Work Package 5. Their bandwidth is limited and does not provide room for actual leadership and participation in standardization activities, but this proposed action will reach out to get full backing in terms of the knowledge and evidence gathered by WP5 and to report the global SDO progress and experiences for further assessment and funnelling into the final deliverable of the eStandards project: the roadmap for a sustainable and collaborative standards development.

The wider context of EU-US collaboration will also be taken into account by this proposal. There have already been successful collaborative precursors, e.g. the Trillium Bridge  project, and the intent is to build upon that legacy. Furthermore, the upcoming H2020 call will be tracked, and any synergies that might strengthen the outcome of this proposal will be investigated and capitalised on when appropriate. For example, this proposal will actively look at potential beneficial initiatives such as the proposed interoperability roadmap– SC1-HCO-14-2016 – project that is anticipated to start by the end of 2016.


Trillium II

On January 1, 2017 a new project, TRILLIUM II, kicked-of. NEN (representing CEN/TC 251 ‘Health informatics’) is one of the 25 partners from Europe and US.

TRILLIUM II is a EU/US Cooperation for Global Interoperability in Digital Health and is advancing an International Patient Summary standard to enable people to access and share their health information for emergency or unplanned care anywhere and as needed starting with immunizations, allergies, medications, clinical  problems, past operations and implants.

NEN/CEN/TC 251 leads WP5 ‘EU/US eHealth Interoperability Roadmap, Open innovation and International Patient Summary Standards Governance’.

The specific objectives of this WP are:


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Shirin Golyardi


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